How and why information should be stored and shared for people with high and complex support needs 

Author: Bridget Meyer

How and Why Information should be Stored and Shared for People with High and Complex Support Needs

Bridget Meyer
1 August 2019

Meyer, B. (2019). An Investigation into How and Why Information should be Stored and Shared for People with High and Complex Support Needs. Partially redacted. (A redacted thesis submitted in conformity with the requirements for the degree of Master of Professional Practice, Otago Polytechnic.) [PDF 4MB]

Executive Summary

This introduction gives a brief overview of the structure of my thesis along with information that is discussed within each chapter. My thesis has five chapters (1) Introduction, (2) Review of Literature, (3) Methodology and Method, (4) Research Findings, (5) Evaluation of Study and Recommendations. At the end of each chapter, I have shared my reflective commentary of learnings gained through the MProfPrac process. Each commentary gives an insight into the various stages of my learning journey as well as other occurrences that were adding colour to the MProfPrac process. Within chapter one I will also introduce a day in the life of a family with two young men who have high and complex support requirements.

Chapter One includes an executive summary explaining the purpose of my research followed by an introduction of myself as the researcher where I give an insight into my values and what is important to me both professionally and personally. The background to my research is introduced along with the learning outcomes I am looking to achieve through this process. Within chapter One, I have presented my first two insights. My first insight is my early education where I have touched on some of the challenges I had during my schooling years. The second insight discusses what my education looks like now.

Chapter Two is my review of literature. Within this chapter I have looked at literature focusing on several areas that I believed relevant to my research question. These areas are (1) United Nations Convention and National Legislation (2) Lived Experiences – Advocacy and Empowerment (3) Medical Model of Disability (4) Social Model of Disability (5) Collaboration (6) Technology in an unspoken world (7) Storing and sharing information. I have given an overview of what each of these areas will encompass at the beginning of the literature review as well as a summary at the conclusion of the literature review. Chapter Two also includes my third insight titled ‘dusting myself off’.

Chapter Three outlines both the methodology I used for this research and the methods used in my research. I also share the screenshots of the website concept that were used during the interview process and other pieces of relevant information. The research participants are introduced in Chapter Three as well as the research questions. I have included insights four and five into Chapter Three.

Chapter Four discusses the research findings as well as the discussion on each point of interest. The findings have been discussed through the themes that emerged during the interview process. I have also included insight six into chapter four.

Chapter Five brings my thesis to a conclusion with the evaluation of the study being discussed along with my future recommendations. Insight seven and eight are included in Chapter Five.

Key words: High and complex needs; Technology; Storing and sharing information; Empowering high and complex support needs; Disability.


This redacted thesis is available under a Creative Commons Attribution NonCommercial NoDerivatives licence CC BY-NC-ND 4.0 International.

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